Hi. I am 25 years old. I am legally blind with very little usable vision, but the blindness does not affect my life much anymore, thanks to learning the proper techniques and having the right tools to live a full life.
However, I am having more and more trouble moving around. Take today for example. I worke up at 9:30am after sleeping very poorly after 4am (I slept well from 10pm to 4pm, though). From 9:30am till 12:30pm, I tried to muster the strength to sit up, but was unable. I finally called my boyfriend into the room, and he helped me sit up and take a pain killer and get something to eat. About 1pm, I was finally able to muster enough strength to walk the 20 setps to the bathroom, and then back to my room to sit in my armchair to get on the computer. Since then, I have been unable to get up from the armchair but for a handful of times. I feel so trapped in my body!
My condition is thus far undiagnosed, though I have been trying for a diagnosis for 7 years now (since 2003). The symptoms include pain in the muscles and joints, particularly the knees, hips, thigh muscles, back, shoulder muscles, and neck…also shooting pains at times up and down my arms, legs, and back. Other symptoms include very poor balance, my knees give out under me sometimes, severe headaches, and a constant feeling of fatigue. I rarely get to do all the things I want to, and even sitting here and typing is starting to hurt my fingers, wrists, and elbows.
My physical condition is slowly deteriorating, and it has been suggest to me by several counselors and my doctor that I should consider getting a motorized wheelchair such as the Hoveround for part-time wheelchair use. I just don’t know…I’m so young, and I don’t want to give up my mobility. I’ve been told that once I start using a wheelchair, I will no longer have reason to force my body to work, and I will have to use the chair more and more, and my body will jsut deteriorate further until I have to be in the wheelchair all the time. Is this true? If so, would having a physical therapist help prevent this? What else can be done to prevent this, if I do start using a wheelchair?
Should I get a wheelchair or should I hold off and use a walker or other mobility tool? I already use a support cane, and have used crutches in the past (though the crutches only made my arms cramp up, no matter how much adjusting was done). I have only used a wheelchair in the mall thus far, and it made me feel very dependent on my boyfriend, who pushed me, as it was a manual and I don’t have the strength to push myself.
Help! Any ideas what to do?